CDG PATIENT MAP

 CDG Patient Map

 

MEET OUR PATIENTS

Rocket Williams, CDG-Ia patient and inspiration for the Rocketeers

The Rocketeers

Fundraiser for Rocket at the MGM Studios in Los Angeles

PLE Patients

Fiona before heparin treatment for PLE

Fiona three months after heparin treatment

Jason.  First patient to try heparin therapy for PLE

Jason's art and our inspiration

Violet and her Dad

Alisdar

Taylor

CDG PATIENTS

Satish

Our CDG-Ia friend, Hunter, taking control

Gianna, CDG-X

Gunnar and Ansel, CDG-Ix

Marina, CDG-Ia

Our friend, Mia, CDG-Ic

CDG-Ia Angel, Veronica

Paul, claims his spot as the first CDG-Ie patient

Alma and her family visit the lab

Jordan keeps up his smile for us!

Ashley all dressed up!