Rocket Williams, CDG-Ia patient and inspiration for the Rocketeers
Fundraiser for Rocket at the MGM Studios in Los Angeles
Fiona before heparin treatment for PLE
Fiona three months after heparin treatment
Jason. First patient to try heparin therapy for PLE
Jason's art and our inspiration
Violet and her Dad
Our CDG-Ia friend, Hunter, taking control
Gunnar and Ansel, CDG-Ix
Our friend, Mia, CDG-Ic
CDG-Ia Angel, Veronica
Paul, claims his spot as the first CDG-Ie patient
Alma and her family visit the lab
Jordan keeps up his smile for us!
Ashley all dressed up!